5 things I wish I knew before I got my port

September 25, 2020 1 Comment

A couple of months ago I was offered the chance to have a power port fitted.
Now you might be asking what on earth a power port is, basically it’s a little purple valve that sits under your skin in your chest and connects to the vein in your neck, and it means that I don’t have to be cannulated in the hand any more when I have treatment.

A ‘Being Childfree’ guest post

August 14, 2020 No Comments

  “There seems to be no shame in asking people if they have children, and even asking why they don’t have children, but oddly, there seems to be a taboo in me responding to the question with “I have terminal cancer”, apparently, that makes people feel uncomfortable.” I’ve not blogged for the longest time. (I’m not sure what to say all that much anymore – don’t…

4 years ago today

August 6, 2020 No Comments

4 years ago today, a 35-year-old version of me, with beautiful long hair and all the energy in the world, sat in a room and listened as a friendly surgeon and a kind nurse told her she had breast cancer. A cancerous lump. A small, treatable, lump. That 4 years ago version of me sat naively, telling herself, that she’d do what the Drs said, to…

Scanxiety

June 22, 2020 No Comments

I’m not sleeping well right now, but I know this machine and what it’ll tell us is the reason why. Waiting for scan results is hard. But it’s also hard to explain to people that are not in this world…… Imagine every 1/3/6 months (depending on your scan schedule – mine is 3 right now!) taking a test that ultimately determines your future, but it being…

Treatment, scans and a lack of advocacy for Stage IV cancer

June 18, 2020 No Comments

View this post on Instagram A post shared by 𝔼𝕞 | 𝕆𝕙 𝔾𝕠𝕤𝕙 (@ohgoshem) on Jun 18, 2020 at 4:09am PDT It’s treatment AND scan day today. So many friends have commented that it’s come round quick. And it has. It really has. They’ve also asked how I’m doing.Full disclosure. I’m weary. And I’m not doing so well right now.It’s hard enough navigating the world with…

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